Spinal Muscular Atrophy - one families story online

Posted 3 years ago #

Hi Guys and Gals - Just wanted to remind you all that I designed and maintain a website for two little boys diagnosed with Spinal Muscular Atrophy - their parents wanted to offer help and support to other families suffering the same as them, as well as keep people up to date with the boys lives and the fund-raising efforts constantly being organised.

We've chipped in at Fabulous Photo Gifts with our own fund-raising scheme for them (read more here - http://www.fabulousphotogifts.co.uk/index.php?ref=fund_raising).

Read their amazing story of courage and about two very special little boys named sam and alex - twins with SMA at http://www.twinswithsma.co.uk - they have their own blog and rss feed so please subscribe / leave a comment and pop back to see how they're doing.

Jonathan - (aka purple13)

Purple13

Founder


Posted 3 years ago #

Cheers Purple 13 and good for you!

Jim

Founder


Posted 11 months ago #

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